Johnsen V, Skattebu E, Aamot-Andersen A, Thyberg M. (2009) Problematic aspects of faecal incontinence according to the experience of adults with spina bifida.
Journal of Rehabilitation Medicine. Jun;41(7):506-11.
TRS National Resource Center for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesoddtangen, Norway.
OBJECTIVE: To describe problematic aspects of faecal incontinence according to the experience of adults with spina bifida.
DESIGN: Qualitative interview study.
SUBJECTS: Eleven adults with spina bifida and bowel problems.
METHOD: Semi-structured open-ended interviews and qualitative analysis.
RESULTS: Problematic aspects were related to participation in terms of time consumption, communication, social isolation, love and sexuality, and accessibility. Also, to a sense of helplessness in terms of panic and worry, to a sense of shame in terms of impurity, social acceptance and self-image, and to bowel function in terms of decisions about colostomy, voluntary constipation, and changing patterns.
CONCLUSION: The results reveal aspects relevant to supporting clinical practice and suggesting issues for questionnaire studies.
PMID: 19543660
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